There are so many worthy causes and a lot that can be gained by sharing information and supporting important research. I'm going to take a break from the fun craft stuff to share a cause that is important to me because
Vasculitis is a disease that has touched my family. Let me share our story . . .
At 17, my son began losing weight - no one thought much about it because he was just a bit chubby and the weight loss seemed to begin about the same time he joined the track team and began training to throw the discus. A couple of months later, he had what everyone thought was probably Mono - he had all the symptoms but the tests showed no Mono. But since his energy level seemed to return to normal, no one thought much about it. In the meantime, he continued to lose weight. A few months later, he started complaining of pain in his ankles . . . and then the pain spread to various other joints. And the fatigue seemed to come and go. He finally reached a point where he was suffering from joint pain, fatigue, a high fever that would spike at night but subside by morning, AND stomach pain with nausea . . . but still, the symptoms were vague and intermittent. His doctor ran lots of test and told us lots of things he DIDN'T have . . . then referred us to an infectious disease specialist. Who told us we might be looking at Juvenile Rheumatoid Arthritis and we should see a
Rheumatologist. Who told us he definitely did not have
JRA but she found a new symptom . . . blood in his urine. So we were referred to a urologist. During the 4 month period while all these tests and specialist visits and so on where taking place, Drew finished High School, turned 18, and moved into a dorm to begin his freshman year of college. By the time we got the referral to the urologist, he had lost a total of 80 pounds and could barely walk up a set of steps. He could barely open a bottle of soda. Then, a new symptom . . . his fingers began turning ice cold which cause unbelievable pain. At that point, I took him to the ER and luckily, they admitted him. Eleven days, one
hospital transfer, 2 biopsies, and dozens and dozens of other medical tests later - we finally had a diagnosis of
Pauci-Immune
Necrotizing Cresentic Glomerulonephritis (a kidney disease) and a few days after THAT, we had a diagnosis that was the underlying cause of the kidney disease AND the joint pain, weight loss, fatigue, etc . . . Drew was diagnosed with
Microscopic Polyangiitis or
MPA, for short. I won't go into all the details but I am happy to say that today, he is in remission and has fully recovered kidney function.
So, what the heck IS
Vasculitis?
THIS article will give you a better answer than I ever could. Oh yeah . . . Dr. Gregory House (you do watch House, right?) LOVES to suggest
Wegner's,
Churg Strauss Syndrome, or any number of other forms of
vasculitis while solving his medical
mysteries.
Alrighty! I've bored you enough for today BUT I may post some other info or links about the topic later this week . . . feel free to ignore them if you would rather just see my stamping projects, okay?
For the purposes of this post, I created my own sketch from a scapbook page I saw on page 78 of Stampin' Up!'s current Idea Book and Catalog. I could have also used someone else's sketch to recreate in MDS, but wanted to make sure I didn't violate any copyright laws! Here is a page created with my template:
